Lariah is 5 years old. She lives with disabilities that are the result of a Mitochondrial Disorder. Skeletal muscle is the primary target of Lariah’s mitochondrial dysfunction. Lariah has no head or torso control, and has weakness throughout her body. She requires maximum assistance to maintain a static sitting position.
Project MEND, through a grant from Charity Ball, provided an assistive device called a Tomato Chair, for Lariah. The Tomato Chair provides her with the... extreme level of support that she needs.
Lariah’s mom says that if not for Project MEND she would not be able to afford a piece of medical equipment such as this. Though she has insurance, and her Doctor wrote an order for the equipment, certain pieces are not covered by her insurance. Project MEND was able to fill that gap. She is grateful for Project MEND, and we are thankful for the opportunity to help Lariah and her Mom have as much mobility and independence as possible.
Kaileigh Moses needed a specialized wheelchair.
Kaileigh is 3 years old and lives with severe Cerebral Palsy. Kaileigh’s mother heard about Project MEND through outreach efforts our Case Managers make on a weekly basis. Kaileigh is unable to sit in a regular chair because her body is stiff and inflexible. Kaileigh's mom has been carrying her in her arms because the chair she has for her daughter is too uncomfortable for her. Her insurance has denied them for a specialized... wheelchair. Because of the generosity of funders, Project MEND was able to get Kaileigh and her mother the specialized wheelchair that meets their needs. Mom was very excited and thankful for the assistance through Project MEND and stated that if it was not for Project MEND, her baby would not have the chair she desperately needed.
Daniel Aguirre received a laptop through Project MEND. Daniel is a US ARMY VETERAN. He is a loving husband, hard worker and community servant. He was a vibrant, strong, 64 year old man who worked over-time at the HEB Warehouse in San Antonio. He was the sole provider for his disabled wife Ruth when he had a debilitating stroke in December, 2013.
For the past year they have had quite a journey of ups and downs and bad health reports. After Daniel regained consciousness from ...a coma, he began to tackle the challenges of left-side paralysis, and a tracheotomy, and his cognitive capacity began to improve. The only communication between Daniel and his care team was eye blinking for yes and no.
Ruth heard about Project MEND through a fellow church member. Once Project MEND’s Case Management staff was able to complete a home visit with him at the rehabilitation center, we, along with a funding partner, Bexar County, were able to provide a laptop for Daniel to assist him with his speech and communication. Subsequent home visits have proven that Daniel’s progress is evident. He is able to communicate more freely and is now able to stand for longer periods of time and walk with a robotic trainer. The Aguirre’s are preparing to go home soon. Project MEND will be able to assist them in obtaining a portable ramp through our Boeing Grant and other home medical equipment that will make independence and mobility attainable for Daniel.